Asbestos Disease Support Groups

There are a number of groups which provide information and support to people with asbestos-related conditions and their families. Contact them for more information. The first two are Victorian.

  • ASBESTOSWISE

    This is an organisation which is an amalgamation of ADSVIC and AISS. Asbestoswise is overseen by an elected Committee of Management consisting of seven volunteer members who govern the affairs of the organisation and a small contingent of paid staff. It  provides a range of community awareness and support programs, including running regular support groups; providing a central access point for information about how to identify, handle, remove and dispose of asbestos;  striving for improvements in treatment, care and diagnosis; working towards an asbestos free environment in Australia by 2030 and more.

    The organisation has produced a very informative video The Third Wave, which everyone should make sure they see. Asbestoswise has an office in Ross House (247-251 Flinders Lane, Melbourne, Victoria, 3000)  Phone: 03 9654 9555. Email: info@asbestoswise.com.au   
  •  Asbestos Council of Victoria (GARDS)

    Recently formed by GARDS is the Asbestos Council of Victoria which is the advocacy arm of Gippsland Asbestos Related Diseases Support Inc. It has a new improved logo incorporating the two names ACV/GARDS. It is located in Gippsland and is a not for profit, charitable organisation.

    The Asbestos Council of Victoria has an elected Committee of Management who govern the affairs of the organisation comprising of volunteers and one paid staff member. It provides a range of community awareness and support programs, including a regular monthly support group meeting as well as a monthly evening organisational meeting. ACV/GARDS provides information and support 24/7, and produces a quarterly newsletter. It has an office where the general public can access information and support 5 days a week. ACV/GARDS provides medical equipment to asbestos sufferers in the Gippsland community with oxygen concentrators, conserving devices, nebulisers, wheel chairs etc.  
    41 Monash Road,Newborough, PO Box 111 Moe, Vic. 3825
    Ph. 0351277744 Fax. 0351260354, Email: info@gards.org
    .  
  • The Bernie Banton Foundation

    The Bernie Banton Foundation says it is all about asbestos awareness, education and advocacy. It is an Australian based registered not-for-profit organisation that aims to make a difference by helping to alleviate exposure to asbestos, in the hope of eventual eradication of asbestos related disease. It also offers support and comfort to sufferers and their loved ones. Karen Banton, widow of Bernie Banton, says on the site: "Bernie and I gave some thought to the idea of a foundation bearing his name, around the time of his diagnosis in August 2007 with mesothelioma, an asbestos-related cancer.  Following Bernie's initial diagnosis of asbestosis in 1999, he became a passionate fighter for justice on behalf of asbestos disease sufferers and their families.  Bernie was also a man of great compassion.  He felt it both humbling and an honour to effect positive change and inject hope for Australians everywhere, through his 'never take no for an answer' attitude."
    Contact details:
    Head Office: PO Box 98, Tyabb, Victoria, 3913
    NSW Office: PO Box 451, Castle Hill, NSW 1765 
    Ph: 1800 031 731; email: info@berniebanton.com.au     
    .
  • The Asbestos Diseases Society of Australia has asbestos information and other services.    
    .  
  • Asbestos Diseases Foundation of Australia  

    The foundation was founded to represent the needs and interests of asbestos disease victims, through information exchange, support networks, referral to medical and legal help and lobby efforts. The organisation is based in Sydney, but can provide information, etc to anyone seeking it.      
    .
  • Asbestos Related Disease Support Society Queensland Inc (ARDSSQ) is an organisation of people who have an asbestos related disease, their families, friends and carers as well as unions, asbestos industry representatives and related government departments.  The Society, which is self-funded, and not for profit, focuses on creating awareness and supporting the growing number of sufferers of asbestos related disease now and into the future. It works closely with medical and legal professionals experienced in asbestos related diseases.
For an list of International Asbestos Diseases Support Groups, go to this page of the International Ban Asbestos Secretariat website.

And from overseas

Mesothelioma Information and Treatment Resource

An informational resource on mesothelioma and the different methods of treatment, including traditional and alternative forms of treatment. The organisation is based in the United States, but has information that may be of interest to Australians.

There are many more international organisations - go to this page for more links.

Last amended June 2015

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